Director of Government Affairs & Advocacy
The Director oversees federal and legislative and regulatory advocacy strategies, and communicates the Foundation's public policy priorities with internal and external stakeholders, with a focus on leading federal advocacy activities. Cultivates relationships with internal and external stakeholders, including affiliates/chapters, other epilepsy organizations, voluntary health organizations; and state and federal legislative offices and agencies. Scope of work includes content development and research in support of public policy priorities; participating in strategic partnerships in line with Foundation strategic priorities; meeting with Congressional representatives; overseeing grassroots advocacy development; interacting with internal and external stakeholders, and planning the Foundation's signature public policy conference. ESSENTIAL DUTIES AND RESPONSIBILITIES: Oversees day-to-day activities in support of state and federal legislative and regulatory advocacy, with a focus on leading federal advocacy activities. Develops and implements state and federal legislative and regulatory advocacy strategy with a focus on access to quality care; research and innovation; budget and appropriations for epilepsy research, programs and services; and disability and discrimination. Oversees development of grassroots advocacy activities. Meets with members of Congress and their staff to advocate in support of the Foundation's public policy priorities as needed and works with lobby team to implement advocacy strategies. Develops letters, testimony, regulatory comments, legislative updates, position statements, articles and op-eds, grassroots communications, and background materials for internal and external audiences Collaborates with affiliates/chapters and other epilepsy organizations in support of public policy priorities. Communicates policy positions with internal and external stakeholders Oversees planning and execution of the Foundation's Public Policy Institute and Teens Speak Up conference and Hill day. Performs related work as required. EDUCATION/EXPERIENCE: Masters' degree in public or health policy, government relations, and/or law degree preferred, bachelor's degree required. May substitute experience for advanced degree. Five to seven years of progressively responsible experience in health policy that includes experience in legislative and regulatory advocacy. SPECIFIC KNOWLEDGE, SKILLS, ABILITIES, LICENSES, CERTIFICATIONS, ETC: Knowledge of - The effective principles and practices of legislative & executive advocacy as applied to the Foundation's public policy priorities. Congressional legislative and appropriations process. Knowledge and understanding of key pieces of law, legislation and regulations in the areas of health care, biomedical research, disability, and civil rights. Public policy and healthcare community of voluntary health agencies and professional medical societies. Knowledge and understanding of civil and legal rights principles applicable to people with disabilities. Ability to - Advocate effectively in support of the Foundation's public policy priorities with members of Congress and state legislators and their staffs, and federal and state regulatory agencies. Keep abreast of developments in the field of health and disability policy and their impact on the Foundation's public policy priorities. Communicate effectively with the public, advocates, coalition partners and Foundation and affiliate/chapter staff. Supervise department staff. Excellent writing, analysis, and communications skills required.