Vice President of Government Affairs & Advocacy
The Vice President of Government Affairs & Advocacy provides strategic direction of EFA's federal and state government relations, public policy and advocacy functions of the Foundation. The VP leads the Foundations strategic efforts to promote federal and state policies and practices to ensure access to care and treatment, to secure & increase federal funding and supports for epilepsy research, public health and government support services, as well as the Foundations efforts to eliminate legal, regulatory and systemic barriers to full inclusion, equal opportunity and optimal quality of life for all people affected by the condition. The VP oversees, manages and executes all federal, state, and local legislative, executive, and legal advocacy activities & services on behalf of the organization. In consultation with Epilepsy Foundations senior leadership and Board of Directors, the VP of Government Affairs & Advocacy develops, manages, and implements the Foundations strategic advocacy agenda, and serves as a member of the senior leadership team. Essential Duties and Responsibilities · Responsible for developing and implementing the Epilepsy Foundation's advocacy agenda, including taking legislative and regulatory action on major state and federal public policy initiatives. · Builds and maintains working relationships with key federal and state legislators and legislative staff, employees, chapters, affiliate network, and key stakeholders in government, HHS, FDA, and relevant agencies. · Monitors federal & state legislative, administrative/regulatory activities relating to epilepsy to identify all bills that impact those with epilepsy, access to care, treatment, quality of life, equal opportunity and inclusion. · Works with elected officials and staff to promote the Foundation's strategic agenda for people with epilepsy. · Collaborates closely with people with epilepsy and their families, with our local offices and Board members to ensure that all policy positions align with their needs and direction. · Prepares analyses of proposed bills, resolutions, or oversight topics, and writes testimony, position statements, fact sheets, comment letters, Q&A, etc. · Prepares briefing documents for legislative hearings and public events for chapter and affiliate network. · Develops and expands grassroots network and directs efforts to advance grassroots policy initiatives and communicate policy positions related to epilepsy; helps chapters and affiliate network. · Establishes and furthers relationships with Congressional and executive agency leaders to promote the interests of people with epilepsy. · Oversees the development and implementation of legal advocacy activities, including updated legal information and materials, and a robust pro bono legal resources program. · Engages in impact litigation or related activities to promote the full inclusion and equal opportunity for people affected by epilepsy. · Represents the Foundation's advocacy interests in coalitions and with strategic partners as appropriate. · Supervises training and development of policy & advocacy staff and performs annual evaluations of staff on timely basis. · Collaborates with the senior leadership team on strategic priorities, and serves as an integral part of the team of spokespeople representing the Foundation publicly, with elected and appointed officials, and in the media. · Collaborates with other departments to communicate and advance the organization's advocacy positions with relevant audiences. · Prepares and manages budget for government affairs & advocacy department. · Other duties as assigned by the CEO Education and Experience Masters degree in public policy, government, and/or law degree. Minimum of 10 years of government relations experience, in health-related issues, civil and legal rights, and development and implementation of public policy positions. Successful track record in public policy work, preferably for a chronic illness non-profit organization, lobbying firm or a Congressional or relevant agency office, promoting civil and legal rights; some years on Capitol Hill working on pertinent legislative issues preferred. Demonstrated success managing government relations/advocacy efforts, legal advocacy activities, policy analysis, programs and staff including budget preparation and staff management. Knowledge of the state and federal legislative process, grassroots, and strategies required. Experience working with elected officials and their staffs to work through legislative questions and issues. Healthcare issues experience in general, Affordable Care Act or Medicaid experience preferred. Understanding of lobbying rules and political activity reporting requirements. Excellent written and oral communication skills Excellent interpersonal skills Ability to work in a fast-paced environment with changing priorities. Ability to lead/manage others, as well as work independently. Credible public presence and be articulate as a spokesperson for EFA on the Hill. Effective collaborator, able to establish and maintain effective working relations with a variety of constituencies.