The CCHS Foundation

Contact: Rebecca Martine

PO Box 230087
United States

Tel: 609-432-8645

About The CCHS Foundation

The CCHS Foundation is a division of the CCHS Family Network, a 501(c)(3) organization.  Our mission focuses on raising funds to further CCHS research via annual grant awards, raising international awareness and facilitating educational programs, and supporting CCHS families in need. We champion scientific and informative advances that will empower individuals living with Congenital Central Hypoventilation Syndrome and their loved ones to live full and productive lives. Our vision is a future where CCHS is no longer a life-threatening diagnosis! For more information on the CCHS Family Network and CCHS Foundation, please visit 

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